Sickle Cell
Data Collection Program
in Wisconsin
The Sickle Cell Data Collection Program in Wisconsin (SCDC-WI) is a statewide surveillance program that gathers data from different sources to create a centralized hub of information to better inform healthcare practices and policies for individuals with SCD living in Wisconsin.
What is
Sickle Cell
Disease (SCD)?
Sickle Cell Disease (SCD) is a genetic blood disorder characterized by abnormal hemoglobin, the protein in red blood cells that carries oxygen throughout the body. In individuals with SCD, red blood cells become rigid and assume a sickle shape, hindering their ability to flow smoothly through blood vessels. This leads to various complications, including chronic pain, anemia, organ damage, and increased susceptibility to infections. SCD is inherited in an autosomal recessive pattern, meaning a child must inherit two abnormal hemoglobin genes (one from each parent) to develop the disease.
SCDC-WI Data
The Sickle Cell Data Collection Wisconsin (SCDC-WI) program utilizes data from Newborn Screening, Medicaid Data, Wisconsin Health Information Organization (WHIO) Data, Vital Records, Wisconsin Hospital Association (WHA), electronic health records data from Froedtert Hospital and Children’s Wisconsin Clinical Data.
Electronic Health Records Data
SCDC - WI Communications
SCDC-WI strives to provide effective communication to its various stakeholders through a wide variety of initiatives.
Infographics
Publications
Conference Presentations
Success Stories